We aim to Improve the Lives of Sickle Cell Patients by Making Useful and Reliable Information about Sickle Cell Disease Universally Accessible.
Sickle Cell Knowledge and Information Network (SCKIN)
Sickle Cell Disease is the Most Commonly Inherited Genetic Disorder Affecting 7.7 M People Worldwide.
90% of Patients Live in the Global South (Nigeria ~ 4M, India 1.2M and DRC ~ 900K). Life expectancy of a patient in Nigeria is 21 years. Life expectancy of a patient in France is 53 years.
We believe that making useful and reliable information about Sickle Cell Disease Universally Accessible can Reduce the Information Gap, Reduce the Life Expectancy Gap, and Improve Patients Lives.
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