SCKIN

Publications

Presentations, publications, abstracts, and other contributions from SCKIN and our collaborators.

Presentations

Can AI Be Trusted for Sickle Cell Disease Education? Introducing SickleCellPedia

Presenters: Zacharie Liman-Tinguiri (Executive Director, SCKIN); Dr. Lewis Thomas (Director for User Experience, SCKIN)

SCD Coalition Peer Learning Exchange (webinar) · April 21, 2026

A real-world case study of SickleCellPedia exploring how AI can support health education — its strengths, its limits, and strategies for using it wisely.

View the poster

Publications

Source: New Globinoscope N°11 (July 2026), the magazine of the FilRougE-MCGRE rare-disease health network.

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New Globinoscope N°11, FilRougE-MCGRE · July 2026

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New Globinoscope N°11, FilRougE-MCGRE · July 2026

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Abstracts

A specialized AI agent for sickle cell patient education in low-resource settings: a benchmarking evaluation

Presenting author: Mr Zacharie Liman-Tinguiri — Sickle Cell Knowledge and Information Network

ASCAT (Annual Sickle Cell and Thalassaemia Conference), London — Paper No. 226 · 2026

Accepted as Oral (forthcoming)

Other Contributions

ASCAT abstract explorer (NotebookLM)

After ASCAT 2025, Zacharie built a public NotebookLM notebook that lets anyone search through the conference abstracts.

Open the notebook